We are doing ok =) The results of Cerys's chimerism came back at 100% Jon's marrow already, which is really early, but wonderful news. She hasn't needed any kind of blood product since, which is quite a different concept for us!! She's off one of the anti-rejection drugs too, which has lead to a rapid growth of the hair, no more peachy head!!! She's also started eating much better over the past couple of weeks, after a very wobbly start, and weighed in at her heaviest ever yesterday at 17.5 kilos =) They are both getting bored and frustrated at home, and taking a bit to keep occupied, but needs must, still far to early to take her anywhere really. Lots of painting, DVD's and making dens!!
We're stil enjoying everyday normal life, and just when I relax a little, something brings me backdown to earth with a bump, and reminds me just what we've been dealing with. We got the sad news yesterday that our transplant buddy had passed away. Seems completely non-sensical that Cerys was a frail little five year old, and just waltzed out of her suite after three weeks, and the strapping 17 year old lad in the room next door could have just about the worst time possible. My deepest sympathies to his loved ones, I can only imagine the huge gap he's left behind. Rest in Peace mate xx
Anyhow, normal life here thankfully, and what have we been up to? Well, may be boring for some, but will add some pictures about our recent adventures. Firstly in October was Grandma's birthday, of course, cake and singing......