Tuesday, 10 November 2009

Where did October go?

Good Morning World=) Hope we at Bryn Ifor find you mainly well,lots of bugs and colds going around at the moment, lots to be said for closing yourself in ;)

We are doing ok =) The results of Cerys's chimerism came back at 100% Jon's marrow already, which is really early, but wonderful news. She hasn't needed any kind of blood product since, which is quite a different concept for us!! She's off one of the anti-rejection drugs too, which has lead to a rapid growth of the hair, no more peachy head!!! She's also started eating much better over the past couple of weeks, after a very wobbly start, and weighed in at her heaviest ever yesterday at 17.5 kilos =) They are both getting bored and frustrated at home, and taking a bit to keep occupied, but needs must, still far to early to take her anywhere really. Lots of painting, DVD's and making dens!!

We're stil enjoying everyday normal life, and just when I relax a little, something brings me backdown to earth with a bump, and reminds me just what we've been dealing with. We got the sad news yesterday that our transplant buddy had passed away. Seems completely non-sensical that Cerys was a frail little five year old, and just waltzed out of her suite after three weeks, and the strapping 17 year old lad in the room next door could have just about the worst time possible. My deepest sympathies to his loved ones, I can only imagine the huge gap he's left behind. Rest in Peace mate xx

Anyhow, normal life here thankfully, and what have we been up to? Well, may be boring for some, but will add some pictures about our recent adventures. Firstly in October was Grandma's birthday, of course, cake and singing...... It's nice to be able to spend some time together as a family, the kids love having people over for a roast on a Sunday, and Iwan has found someone his own size to play with ;) That's actually Cerys, but you know what I mean!! We also are able to go to Grandma's for lunch every now and again (the bungalow looks fab btw!!) We also have the odd walk, and watch the odd film, make the odd mess..... Jon and I went to a Charity do for Alder Hey a couple of weeks ago too, bit posh for me, but we coped ;) He dusted out his dickie bow, and even gave a speech to everyone about the difference their money made, which I'm sure made people dig deeper, and they estimated that £12,000 pounds was raised. Good times! Here's a pic of Jon in his finery (there isn't a decent one of me, must have looked like a tramp ;) ) Fireworks were a bit wet here, and we couldn't go to a display this year, we did try to have a few at home, but got rained off after ten minutes unfortunately, but the hotdogs we had were nice ;) Cerys loved them...... See if you can spot Iwan!!!! So all in all, we're ok!!! Still back to clinic every fortnight, and starting to think about Christmas, eck!!!! Going to try and leave you with a video which hopefully will make you smile....Hope everyone is ok, would love some feedback. Kisses and cuddles to all those who need them =)