Tuesday, 5 May 2009

What a few weeks..........

Right, have finally remembered my password, and got a second to update everyone!

Everyone probably knows we're at Alder Hey :( It all started when Cerys came home form Nain's screaming with pains in her legs, and after a night with no sleep, we took her into the hospital, who sent us here exactly two weeks ago today. They Diagnosed Acute myeloid leukemia, and she was given a Central line to start immediate chemotherapy. Since then we've had ten days worth of chemo, and when they hinted at us being allowed home, they found an infection in one of the three lines going into her central line, so we're still here!!! We're all going a little stir crazy too, she's bored, and wants to play with some other kids, and Jon is like a bear....no, not with a sore head, a bear with no bike I think!!!! So I'm sending him home for the sake of all our sanity again today.

So we're one load of chemo done, hopefully the temperature will remian stable over the next few days, and they have now inserted a feeding tube that will let us build her up calorie wise. Wish I had the same problem, my waistline has definately suffered by at least an inch!!!! We're all trying to stay upbeat, but we're missing home now, and longing for some normality before the second lot of chemo starts.

Cerys is amazing, she's been so brave, and has has smiled through mostly everything. She's been entertaining other children, and telling younger ones that there's nothing to be scared of. She's even been making me laugh when she's been hurting, and to say I'm proud of her is the biggest understatement of the naughties. She managed to have a good birthday too, and managed to play outside before the rain started! Iwan has also been a trooper, and has been good for Nain.

That's it in a nutshell!!! We want to go home, and can't wait to be normal again. Thanks to everyone for the messages of support, my friends and family are keeping me going, and I owe them all hugely. I do have some pics that I'm not really sure if I want to post on Facebook - Is it appropraite you think? so will post them here when I get home.

Speak soon
XXX

1 comment:

Louise said...

you are all an inspiration and (((hugs))) to you all.

I don't mind the photo's.