Another trip to the hospital

Hello again! Nice to hear from you, glad you're all well.

We've been to visit the clinic again today, and the consultant was willing for Cerys to continue to be supported using transfusions, as it's only her red blood cells that keep dropping for some strange reason. As the Transplant is such a major step, and will make her quite poorly, they want to keep it as a last resort really, so we are to keep a close eye on her, and go back in six weeks to review. In the meantime, I think she will need another transfusion in a couple of weeks or so, but we can arrange that at the local hospital here. Iwan was tested as a match today too, and both kids were so brave and have now forgotten all about it!!

We had a fairly quiet weekend, we visited Llangollen on Saturday, where Thomas the Tank was visiting!!!!! The rain was torrential on the way there, but was dry but cold when we got there. Cerys was in awe, but Iwan was less than impressed, saying he was too noisy!! Here are some pics.....

He was more impressed hen we got the lunchboxes out when we were allowed on the train!


They were both trying to spot everything out the window..Iwan claims to have spotted a Hippo, but I'm not sure I believe him to be honest!!



And here's proof it was actually pulled along by Thomas!




So it was a really good day out, but it was slightly dampened when we got a parking ticket, oops! But never mind!! So that's it for now, we can actually try and live normally for a while, just keeping a very close eye on the kids.

Take care, speak soon
XxX

Happy Thanksgiving.

Hello, from a very, very wet, and very, very, VERY windy Wales!! Hope all is well with you.

Not too much to report, kids are doing ok, both have a cold, but it's not bothered them massively thankfully. However, Cerys did take part in her first school "concert" today, making Jon and I very proud indeed,in fact I could have happily cried through the lot! But I am a soppy so and so anyway. Unfortunately, pictures weren't allowed, hopefully we'll get a dvd of the performance, but belive me, there were quite a few stars in the making!

Nothing much else happening at the moment, we have Graham and Emma down to stay over the weekend hopefully, so may get some new pics then. We are also back at Alder Hey on Monday, where they will test Iwan for a match. Now THAT will be fun, NOT!!!! But never mind, needs doing.

Hope everyone's ok, speak soon
XxX

WHERE IS EVERYONE!!!!!

Cerys and Iwan are looking for you everywhere, including up the chimney!! Only joking, they were actually looking for Santa in this picture. Don't ask me why, I'm aware its only October, but still, it was allegeedly a good idea to search for the Big fella, although the colour on th pair of them wasn't so great!!

This next pic is ace I think. Its Cerys after her latest blood test at Bangor. She's not too happy at having it done there, as they don't do the prick test like they do at Alder Hey, so it's a bit more painful and she does get upset, but the absolute STAR she is, this is how she deals with it. This picture makes me feel so proud!!

Anyway, the results last Friday were god, her HG level came back at 9.6, which is the highest it's been since she was initally tested. Obviously we're not assuming she's been cured or anything like that, but we're taking it as a sign that she's not deteriorating quickly, as some of the people I've spoken with have been far, far poorlier than Cerys. This is good, becasue they prefer you to be as healthy as possible when transplanting (healthy may not be the right word, but you know what I mean) so we're trying to focus on every little positive.

So, w had a good weekend :D Cerys got a new teddy.....

and Taid bought them a copy of the Jungle Book, and as you can see, the pair of them never moved

We fed the ducks...say hello to Chris!



and as it was such a nice Sunday over here, we spent the afternoon in the garden.



Hop you are all ok, speak soon.

Evenin all!

Hello again! Another quickie off me becasue its late(ish) for me and I need a Panad and a shower before bed! Yesterday wet ok, her blood had diped to 4.9, not too bad considering she'd had a stomach bug, but they decided to transfuse to keep her well. So it was another really long day for the pair of us, not geting back til gone nine at night. Again, she was such a star, really good. We had a good chat with "our" nurse, and a few things are clearer regarding the treatment she will receive. Fore warned is fore armed and all that!
Here she is, waiting for the blood to arrive, watching Dumbo in her room. She does have a very Mel-ish trait though,and we have to fast forward through the bad bits of the film :-D


And who was waiting for us when we got back? Welcome the newest member of the family.......this is Amy!! (Cerys named her, and she took the picture too)


So there we go, I am for my drink and dunk now. Back to school for Cerys tomorrow and lazy day for Iwan. Hope all is well, speak soon
MWAH!!