Night 18 in the Alder Hey house........

and we're officially bored and narked off!!

Although still a little poorly, Cerys has decided the novelty has worn off being in hospital now. We're still here as she's had slight temperatures, they're concerned that the infection won't clear as they don't know 100% what it is (they've sent a test down to London if you please!) so they are still keen to be keeping an eye on her. She's generally well, although was down yesterday, which was down to the sedative she had to reinsert a nasal feeding tube I think. Her hair has also started to fall out, so we had to a serious discussion about that. We've skirted around the issue before, but now reality has hit home I suppose. Even on a down day, Cerys being Cerys, has decided that when it grows back, she'd like it black and curly, so we're going to see what we can do! She's decided she'd prefer to wear hats as opposed to bandanas, although I'm trying to badger home the message that she will be beautiful regardless, I'm sure she'll take it on board!!

So anyhow, yes, she's now receiving supplementary feeds too, as she's not eating very well. Barney and Anti Beryl noticed a difference in her today, so fingers crossed she'll get some meat onto her bones again in the next couple of days. She has also been scanned til the cows come home, we have pictures to show Miss Jones in school :) so we know that she's generally well!!! She's been to school today too, and some of her artwork has been placed on the wall by the enterance to the ward. I'll take a pic and post it when I get home.

Iwan is also doing well, although he has a cold, so can't come in for a few days. he now apparently doesn't like breakfast either, only Yorkshire puddings, which is worrying, but being three, he's entitled to these decisions I suppose!!!!!

Everyone at home is pulling together and helping each other out. My friends have been wonderful, and so supportive. I don't know what I'd do without any of them.
I'm going to pester the Docs for a more certain date for going home tomorrow too, so will try and keep you all informed. So that's the past few days in a nutshell. Chemo sucks, the boredom and solitude sucks, but getting a few steps closer to the end rocks.